Chordoma_Support_Group : Chordoma Support Group

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Welcome to the Chordoma Support Group, an independent online community, active since 2001. We use a message board and email to communicate with each other around the world. Our message board is provided by Yahoo! - thanks Yahoo! Yahoo! places advertisements on this page and others. Because of this, there is no cost to us to use or maintain the message board.

This is a peer group, for patients, family and friends, to offer support, friendship and understanding and shared experience. There are links posted to relevant on-line information, by qualified people and from reputable sources, but these cannot substitute for professional, medical advice. The information posted on the message board and information pages is designed to complement, not replace, the relationship between a patient and his or her own physician. The minimum age to become a member of the Chordoma Support Group is 15 years old.

There is a specialised Sacral Chordoma board.

More information? - visit http://www.chordomasupport.org

Useful research links are listed at: Chordoma Support Research

Welcome! We're all in this together, right?

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Re: My Story/Experience/Rant-Advice Please (Long... Austin, Yes, that is true. As for effectiveness compared to Lyrica, the Lyrica was probably a little bit better. BUT I gained 30 pounds within a few short Posted - Wed May 16, 2012 3:47 pm	desti625@... ladonna.hoyt Offline Send Email
Re: My Story/Experience/Rant-Advice Please (Long... La Donna: you have been athis along time.Gabapentin is the same as Neuroten? Do you think that it is more effective for pain than Lyrica? I had a sacral Posted - Wed May 16, 2012 3:29 pm	Austin Moore amoore5535 Offline Send Email
Re: European Patient Meeting What a good step forward! I will sure want to join this meeting, looking forward to it! I am working myself at a radiotherapy department in the Netherlands. If Posted - Wed May 16, 2012 5:46 am	connienl078 Offline Send Email
Re: One year Kirsten, change the title to bitterSweet as you are still here after a year and we plan on keeping you around for a long time to come. After over 10 years Posted - Wed May 16, 2012 1:33 am	najones11@... najones11 Offline Send Email
European Conference June 20th for Phyicians _http://www.chordomafoundation.org/latest-updates/announcing-the-first-europ ean-conference-on-chordoma/_ Posted - Tue May 15, 2012 7:28 pm	shozgirl@... shoozgirl Offline Send Email

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2012	154	263	110	150	116
2011	176	163	243	225	135	137	216	189	408	217	174	153
2010	72	130	193	154	124	101	236	126	225	288	234	302
2009		5	61	46	61	52	84	109	115	114	71	74

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Welcome! We're all in this together, right?

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