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You have reached the Chordoma Support Group, an independent online community, active since 2001. This message board is closed to new postings, as of May 8th, 2013

We apologise if you missed us.

Members of this group may access information and contacts until June 8th 2013.

There is a Chordoma Group on Facebook at https://www.facebook.com/groups/ChordomaSurvivorsPrivate/

If you are a newly diagnosed patient, be very sure that your surgeon has experience with chordoma. Ask if necessary. Chordoma surgery is usually followed up by radiation. Many people opt for proton beam radiation.

You can contact us at : chordomamanagers@gmail.com.

Most Recent Messages

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Re: Joining Facebook Private Chordoma Group
https://www.facebook.com/groups/ChordomaSurvivorsPrivate/ Anyone having an issue please let me know Sharon We can cure chordoma! www.chordomafoundation.org
Posted - Mon May 13, 2013 9:21 pm
Sharon Berlan
shoozgirl
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Re: Joining Facebook Private Chordoma Group
How do we join Chordoma Suvivors??   Austin ________________________________ From: Sharon Berlan <shozgirl@...> To:
Posted - Mon May 13, 2013 5:59 pm
Austin Moore
amoore5535
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Goodbye....
Goodbye to everyone associated with the Chordoma Support Group. Many thanks to all those who helped with the group, those who reached out to others, and those
Posted - Wed May 8, 2013 8:38 pm
uswoods5
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Re: This group will close permanently to messages on May 8th 2013
Diane, I hope there is a rainbow at the end of all your sorrows. All the best and sending you hugs. Norma Sent from my iPad U
Posted - Wed May 8, 2013 2:21 am
najones11
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Re: This group will close permanently to messages on May 8th 2013
Oh Diane, I am so sorry for all you have been going thru. Maybe we will connect thru the fb group. There are so many members there, I am not sure who is who. I
Posted - Tue May 7, 2013 10:54 pm
bcisquette
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 168 83 186 65 39
2012 154 263 110 150 178 151 159 137 178 258 147 133
2011 176 163 243 225 135 137 216 189 408 217 174 153
2010 72 130 193 154 124 101 236 126 225 288 234 302
2009 5 61 46 61 52 84 109 115 114 71 74

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