Hello Einat, How good is that, I sincerly send my good wishes for the soon to be operation for your Father. Thank you for taking time to reply to me, I am...
1507
dansfae@...
dansfae
Jun 15, 2010 1:00 pm
Thank you Dorothy. I have had no further treatment in the 15 years. I live a normal life. I'm not the only one. Fae In a message dated 6/15/2010 8:44:44...
1508
Tina Rosen
tinasfunstuff
Jun 15, 2010 1:02 pm
Thanks for all the great feedback, as we all need hope to move on with our lives. That 7 year prognosis is downright frightening! I'll be going for my annual...
1509
Lisa Vanelli
lmvano
Jun 15, 2010 1:54 pm
Amen! ________________________________ From: uswoods5 <uswoods5@...> To: Chordoma_Support_Group@... Sent: Mon, June 14, 2010 5:39:39 PM ...
1510
Lisa Vanelli
lmvano
Jun 15, 2010 1:58 pm
Yes, the medical community is all about statistics and can be so frightening and disheartening. The appointments are certainly not uplifting for my dad, for...
1511
Sharon Diebel
diebelsharon
Jun 15, 2010 2:08 pm
I just went through another surgery 4/29 and spent 6 weeks in the hospital recently getting out. I had an follow up yesterday with my surgeon and his words...
1512
uswoods5
Jun 15, 2010 2:18 pm
Hi everyone, I need help with some link checking on the website. We are re-applying for accredition as a reliable website from the Health On the Net [HON]...
1513
Tina Rosen
tinasfunstuff
Jun 15, 2010 4:14 pm
Dear Sharon, My prayers are with you that from this day forward, it will be an uneventful and smoother recovery process. Your bravery and fortitude is...
1514
Tina Rosen
tinasfunstuff
Jun 15, 2010 4:19 pm
Good afternoon everyone, Thought I could form a support group somewhat locally in an attempt to meet and greet. The bonding will come naturally! Even if it...
1515
mary bentley
mbbrvt
Jun 15, 2010 8:27 pm
Sharon, Glad to hear your surgery went well and you are healing. God Bless. Mary/Ohio ... From: Sharon Diebel <dynamodog@...> Subject: RE:...
1516
DOROTHY ENGLAND
d.england445...
Jun 15, 2010 9:12 pm
Hi Sharon, Well you make me feel quite small for all you have been through and are still going through,well, what's a bit of pain when you are fighting your...
1517
respap
Jun 15, 2010 9:14 pm
Hi, I have been diagnosed with Chordoma. Am 37 y old and having back pain ( not very frequently) till 2 weeks back when I have been found with Sacral Chordoma...
1518
Diane Stacey
mediumgift
Jun 15, 2010 9:57 pm
Sharon, God bless you! You've been through so much and I'm proud of you that you maintain such a wonderful spirit inspite of it all. Cancer is such a difficult...
1519
Diane Stacey
mediumgift
Jun 15, 2010 10:00 pm
Hi Ann, If you don't get any other takers and don't need it done this week, I could help. I'm heading off to the hospital for an anterior cervical diskectomy...
1520
shozgirl@...
shoozgirl
Jun 15, 2010 10:06 pm
Sharma...u can look at past posts or email me off line and I can direct u / speak on phone if u like. U shd get multiple opinions as there are various options...
1521
Diane Stacey
mediumgift
Jun 15, 2010 10:15 pm
That can be scary Tina. I just hit 8 years and this time my MRIs were the worst ever for me. I think it is nice to have the support so we can come here and...
1522
Diane Stacey
mediumgift
Jun 15, 2010 10:23 pm
Ann, I'm with you! Diane ________________________________ From: uswoods5 <uswoods5@...> To: Chordoma_Support_Group@... Sent: Mon, June 14, 2010...
1523
Diane Stacey
mediumgift
Jun 15, 2010 10:29 pm
Dorothy, I wrote a reply a few minutes ago and intended to send to you, unfortunately with the economy I have had to put my brain on part-time job status!...
1525
uswoods5
Jun 15, 2010 10:45 pm
Go and get your diskectomy(? ) and I'll catch up with you later. If they did your chordoma surgery, that's going to be a tremendous help. I'll catch up with...
1526
Lisa Vanelli
lmvano
Jun 16, 2010 12:52 am
sorry if someone already posted! http://news.xinhuanet.com/english2010/health/2010-06/09/c_13340905.htm...
1527
morganstephenson
morganstephe...
Jun 16, 2010 4:10 am
Hi Sharma, My mom has Chordoma and lives outside of Chicago. She has been going to the UW-Madison for treatment (surgery/tomotherapy and "chemo"). She has...
1528
Melanie
mellimelwith...
Jun 16, 2010 5:23 am
very cool!...
1529
Tahsin Turunÿffffe7
drtahsinturunc
Jun 16, 2010 8:07 am
Hello, I'm 39 year's old. I had been operated 1 years ago in John's Hopkins hospital. My sacral chordoma was 7-8 cm. I'm cure, I can recommend you to go to...
1530
Research paper
respap
Jun 16, 2010 2:03 pm
Thank you Leslie for your response and recommendation ... From: morganstephenson <morganstephenson@...> Subject: [Chordoma_Support_Group] Re: Diagnosed...
1531
Lisa Vanelli
lmvano
Jun 16, 2010 5:57 pm
more details... http://www.businesswire.com/portal/site/home/permalink/?ndmViewId=news_view&newsId=20100608005738&newsLang=en ________________________________ ...
1532
Mimi Olsson
mimiolsson
Jun 17, 2010 12:42 pm
I have the following pdf article...please request off group and by TITLE to mimiolsson123@... C-propeptides of procollagens I{alpha}1 and II that...
1533
Kim Osborne
kimmlind2003
Jun 18, 2010 3:39 pm
My son is 29 years old and has developed some suspicious symptoms that are similar to the ones his Father had before his diagnosis of chordoma. I understand...
1534
uswoods5
Jun 18, 2010 3:58 pm
Here's the contacts and description for the Family Chordoma study. http://dceg.cancer.gov/geb/research/activeclinical/chordoma They are very helpful. My sons...
1535
uswoods5
Jun 22, 2010 2:42 pm
On behalf of a member: Has anyone had, or knows anyone else,who has had sacral surgery in Ontario/Toronto? Thanks Ann chordomamanagers@......
