Best wishes and prayers for your dad and you!! Mary/Ohio ... From: Lisa Vanelli <lmvano@...> Subject: [Chordoma_Support_Group] MRI results To:...
1599
Paulo M Lima Filho
plimaf@...
Jul 9, 2010 1:29 am
Espero que tudo corra bem para o teu pai. Paulo, de Porto Alegre, Brazil....
1600
Paulo M Lima Filho
plimaf@...
Jul 9, 2010 1:31 am
Temos que ter muita fe, para que alguem consiga descobrir a cura desta insidiosa doenca. Paulo, from P.Alegre, sul do Brazil...
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Tina Rosen
tinasfunstuff
Jul 9, 2010 1:39 am
Dear Lisa, I will pray for your dad's situation. Yes, the most important thing is the surgeon's expertise with chordomas. Everyone on this site will tell you...
1602
uswoods5
Jul 9, 2010 1:45 am
Translation from Paul in Brazil: We need to have faith, that someone will discover the cure for this insidious disease. Paul's earlier message is of good...
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Lisa Vanelli
lmvano
Jul 9, 2010 8:24 pm
Thank you all for your support. He has had all of his treatment at MGH in Boston so we had always hoped for the best after the first round (4 years ago), but...
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Iris
irisjm...
Jul 9, 2010 8:56 pm
While I cannot offer any information about an intradural tumor, I just wish to convey heart-felt support. Sincere wishes for successful surgery and complete...
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Lisa Vanelli
lmvano
Jul 9, 2010 8:58 pm
Thanks so much! We really appreciate all of the well wishes! Just when we thought the news couldn't get any worse, it does...it's very scary. ...
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Bill
wmalvey
Jul 10, 2010 5:40 am
... I decided to go to doctors at St. John's this time and I just had surgery June 4. Of all my surgeries, this was the easiest. It was done my...
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norma jones
najones11
Jul 10, 2010 12:57 pm
congratulations. Keep up the good news. We are with you in thought, spirit and prayer. Norma...
1608
uswoods5
Jul 11, 2010 6:44 pm
We got six more - anyone else?...
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reps1983
Jul 13, 2010 7:05 pm
My husband, Preston, and I made it to Boston. He did photon treatment last week, and this week he started his proton treatment. He just had his 6th treatment...
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uswoods5
Jul 13, 2010 7:09 pm
I know Joe and Laura Quinn are there from Toronto. Ask at the desk if the new group pins have come and help yourselves. Ann...
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shozgirl@...
shoozgirl
Jul 13, 2010 7:26 pm
Only 6 treatments is unusal as far as I understand it! What was different about Preston that they only did Photon (not Proton) and only 6x? Sharon/NYC In a...
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Tina Rosen
tinasfunstuff
Jul 13, 2010 7:35 pm
Hi, Just ask at the desk and they'll tell you who else is there. If they don't, just ask Kathy Selleck....Dr. Liebsch's secretary. ... From: reps1983 To:...
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Diane Stacey
mediumgift
Jul 13, 2010 8:01 pm
Lisa, Best of luck to you and your Dad. My Chordoma was at T-12 so I have an idea of what he is dealing with. My thoughts and prayers go out for both of you. ...
1614
Tina Rosen
tinasfunstuff
Jul 13, 2010 8:03 pm
Hi group, Just returned from MRI report with Dr. L. @ MGH and all looks clear!!!!!!!!!!!!!! I had the BEST discussion with him since my first visit/treatments...
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uswoods5
Jul 13, 2010 8:08 pm
I'm so glad for you, Tina. I get a lot of questions about that seven year comment from new, worried members too. Ann...
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Tina Rosen
tinasfunstuff
Jul 13, 2010 8:13 pm
Hopefully now you can tell them it comes from the major American oncologist, radiologist and physicist at MGH.....that it DOES NOT APPLY! That's gotta be...
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uswoods5
Jul 13, 2010 8:22 pm
Never believed it anyway. I'm working on year eight. :-)...
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Tina Rosen
tinasfunstuff
Jul 13, 2010 8:36 pm
You're my idol!!!!! Before this thing ever came about, my glass was always half empty unfortunately. It all comes from the way we were raised etc. and let me...
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shozgirl@...
shoozgirl
Jul 13, 2010 10:32 pm
Congrats Tina! Great news..very happy for you! Sharon/NYC In a message dated 7/13/2010 4:03:41 P.M. Eastern Daylight Time, tinasfunstuff@... writes: Hi...
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Lisa Vanelli
lmvano
Jul 13, 2010 10:33 pm
We will be at MGH tomorrow but my dad will be having a myelogram. We'll be at Ellison 2nd Floor in Radiology.  Best of luck to you and your husband!!! ...
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Lisa Vanelli
lmvano
Jul 13, 2010 10:58 pm
Thanks so much, Diane. We are just so overwhelmed right now. We just found out Friday that he actually has an intradural tumor that is starting to compress...
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Lisa Vanelli
lmvano
Jul 13, 2010 10:59 pm
Cheers! ________________________________ From: Tina Rosen <tinasfunstuff@...> To: Chordoma_Support_Group@... Cc: Mark Hayward...
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mary bentley
mbbrvt
Jul 13, 2010 11:26 pm
Hi evryone!!  I am in Boston, staying at Hope Lodge. Today was day two of IMGRT, only 8 more to go then proton beam. Everything is going well- my stomach...
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shozgirl@...
shoozgirl
Jul 13, 2010 11:51 pm
R u hvg imgrt at mgh wth dr l? Sharon/ nyc Sharon Sent from my Verizon Wireless BlackBerry ... From: mary bentley <mbbrvt@...> Sender:...
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caddygirl57@...
reps1983
Jul 14, 2010 12:10 am
We'll be staying at the Hope Lodge starting the 26th. They couldn't get us in for the first few weeks so we've been staying at the Beacon House. I'll have to...
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caddygirl57@...
reps1983
Jul 14, 2010 12:11 am
Thanks! I think conquering the boredom is our biggest challenge. ... From: Lisa Vanelli <lmvano@...> To: Chordoma_Support_Group...
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caddygirl57@...
reps1983
Jul 14, 2010 12:14 am
I asked about the pins and they said they haven't had them in a while. When were they sent? ... From: uswoods5 <uswoods5@...> To: Chordoma_Support_Group...
