Thank you for sharing your story Judy. I was diagnosed with cervical chordoma a month ago. After the birth of my son, I started experiencing frequent...
2211
shozgirl@...
shoozgirl
Oct 5, 2010 12:15 pm
Judy: You have been thru so much and a long time contributor to this board. You are a survivor (as are we all) and I am grateful you continue to read and...
2210
Carter, Judith
judithcarter100
Oct 5, 2010 4:23 am
Thanks, LaDonna. So far so good ...and I'll take whatever time I can get, since it's all more than I anticipated (and probably, deserve). Judy ...
2209
desti625@...
ladonna.hoyt
Oct 5, 2010 4:08 am
Judy, wow, your story is so amazing. You've been through so much. I hope that you won't have any #5's, and that you can live a long life! LaDonna In a...
2208
desti625@...
ladonna.hoyt
Oct 5, 2010 4:05 am
In a message dated 10/4/2010 11:03:31 P.M. Central Daylight Time, carterj@... writes: think that size and location are important to the success of...
2207
Carter, Judith
judithcarter100
Oct 5, 2010 4:03 am
think that size and location are important to the success of having radiation only. I have a relatively small cervical chordoma (about 32 mls). I had proton...
2206
shozgirl@...
shoozgirl
Oct 5, 2010 3:28 am
Yes, it is correct, on my cervical tumor I had no treatment other than IGRT. Prior to that, on clival chordoma I did have surgeries and then Proton Beam. But...
2205
desti625@...
ladonna.hoyt
Oct 5, 2010 3:22 am
Nadine, good luck with this! I hope this new IGRT technology will have long term success for many! Please keep in touch with us so we will know how each...
2204
Nadine A.
naycordova
Oct 5, 2010 2:13 am
Ann, Technically this is my 4th opinion. I believe in this approach more than the others I have seen. I only know of one person who had this treatment first...
2203
uswoods5
Oct 5, 2010 2:06 am
That sounds encouraging. Are you going to get a second opinion at all? Has anyone here had IGRT as a first intervention? The only person I know had had other...
2202
shozgirl@...
shoozgirl
Oct 5, 2010 1:39 am
Nadine: did not know your name meant Hope. Well that is a good omen :) Very glad to know all the below and so happy for you....there is progress being made as...
2201
Nadine A.
naycordova
Oct 5, 2010 1:14 am
Hi everyone, I promised you all an update once I got to New York and met with the Doctors. The treatment plan I received from MSKCC is initial treatment of...
2200
Anne Vigil
acvigil...
Oct 5, 2010 12:50 am
Lisa, Congrats to you and your Dad and Mom. I am sure your Dad will be glad to be home. Take care. Anne ________________________________ From:...
2199
sassywhozzit@...
whozzit2
Oct 5, 2010 12:41 am
Me puedes escribir: sassywhozzit@...! Te dire que me llames pero es dificil para mi hablar por telefono...cuando me operaron...se dano mi voz! ...
2198
Estela Morales Amaral
caribemma
Oct 5, 2010 12:26 am
Hola Suzette! me encantaria hablar contigo!! Gracias, Estela...
2197
sassywhozzit@...
whozzit2
Oct 4, 2010 11:47 pm
TIna, My story is very similar...don't feel lonely...there are many people-in this group- who share your experience! I know what you mean about being thankful...
2196
sassywhozzit@...
whozzit2
Oct 4, 2010 11:35 pm
Estela, Me llamo Suzette...tengo un (Clival) Chordoma...yo tambiem soy boriqua! Tenemos dos cosas en comun ;-) Hace mas de 10 anos que me operaron...si quieres...
2195
caribemma
Oct 4, 2010 10:40 pm
I am moved by the love, compassion and generosity that flows from every word written on all the posts. Thank you all for sharing, it fills me with hope. Your...
2194
JOE QUINN
joequinn...
Oct 4, 2010 10:05 pm
hi mary joe quinn the (mighty quinn) ... From: mary bentley <mbbrvt@...> Subject: Re: [Chordoma_Support_Group] dad's on his way home - finally!!! To:...
2193
desti625@...
ladonna.hoyt
Oct 4, 2010 9:29 pm
Lisa, hooray for your dad!!! I hope his recovery to good health will happen quickly! LaDonna In a message dated 10/4/2010 11:15:30 A.M. Central Daylight Time,...
2192
desti625@...
ladonna.hoyt
Oct 4, 2010 9:27 pm
Jennifer, I see that you've already received some good advice and options from a few other members. I don't have anything to add to that, other than to say...
2191
Ameeta Shah
ashahphd
Oct 4, 2010 9:03 pm
Dear Theresa, I too had a sacral chordoma removed in 2002 and underwent a colostomy in Oct. 2009. You can email ashahphd@... me separately and I will...
2190
mary bentley
mbbrvt
Oct 4, 2010 4:47 pm
So glad to hear your dad is on his way home! I can understand the wanting to sit in your own chair and not be bothered. Congrats!! Mary/ Ohio ...
2189
shozgirl@...
shoozgirl
Oct 4, 2010 4:26 pm
Being home will be wonderful for him and he will recover more quickly, definitely. Very good news, thanks for posting, Sharon/NYC In a message dated 10/4/2010...
2188
uswoods5
Oct 4, 2010 4:23 pm
Great news. Thanks for sharing! Ann...
2187
Lisa Vanelli
lmvano
Oct 4, 2010 4:19 pm
I'm so sorry that your brother is in pain. Do you have visiting nurses, etc. coming to your house? Can't they do something for him ASAP instead of...
2186
Lisa Vanelli
lmvano
Oct 4, 2010 4:15 pm
Mom and dad just called.  Dad's in the car on his way home - FINALLY! It's been 6, LONG, scary, exhausting weeks! He is feeling good. He is using a...
2185
shozgirl@...
shoozgirl
Oct 4, 2010 2:51 pm
I will send you a private msg In a message dated 10/4/2010 8:15:26 A.M. Eastern Daylight Time, jennifer_leibowitz@... writes: Sharon, I am at wits end....
2184
uswoods5
Oct 4, 2010 1:19 pm
Had both of those problems. For your brother's bowel problem, you can buy a tasteless, soluble fibre powder that dissolves in any drink, better in a hot one....
2183
Jennifer Leibowitz
jennifer_lei...
Oct 4, 2010 12:15 pm
Sharon, I am at wits end. My brother is in so much pain. I spoke to Dr. Liebsch in Boston, he wants me to do a whole resume and get all records. I am ...
