I'll be heading for the deep Canadian woods for a week or two starting this Saturday. A tiny cabin with waterfront, deer, trails and silence. No cable, no tv...
Steve: I am a male and have be self cathing for 9 years. I have not had a UTI for many years and I have no trouble with my bowel. If you would like to talk you...
I heard that there are only two places in the world that have this, Japan and Germany. I also heard that it is really the only radiation that will actually...
Does anyone know anything about carbon ion radiotherapy? It seems to be the treatment of choice for sacral chordoma at this one hospital in Japan. I was just...
I believe we all know a little about set backs and congratulate you on your positive attitude on advancing forward. It is a day by day progress, but you will...
Steve: So glad to know you're recovering. As you know, complications can be common with our type of operation. I too suffered several major ones during my...
Thank you Ann, nice summer also to you and to other members of chordoma group Francesco and Daniela Benzi, Italy ________________________________ Da: uswoods5...
Steve: it sounds like a rough road but you are on it, moving and progressing...thank you for keeping us posted and we are sending positive energy your way....
Hi all, Three weeks post surgery and I have moved to the in-patient rehab center here at UW Med. Center. I had some set backs dealing with blood infections...
Chordoma Support Group Newsletter July 2009 Where are we?!? The Group has settled for the time being. I'm sorry it has taken so long. I wanted to find an...
... Thank you. I have a friend with this type of tumor. She had surgery in 1994, one year before me with clival chordoma. She now sells health insurance....
Does anyone know what type of tumor designer, Tara Subkoff, has? It is reported she will have brain surgery in 2 months, that her tumor is benign, and that...
Susan continued: I'm sorry, I'm typing from my iPhone and not doing a very good job of it. I was going to close by saying only a handful of Dr should be...
Thanks for responding so quickly. If you wouldn't mind giving me a summary of your experience at Mayo in Rochester. I am considering going there. Susan ... ...
Dear Susan: I was diagnosed with a sacral sarcoma in August of '07. After much research on the Internet, it seemed as if every medical paper written was either...
Susan: You can email me at amoore5535@... if you want to hear my experience with a large sacral chordoma Austin ________________________________ From:...
I had a sacral Chordoma and it was resected at the Mayo Clinic in Rocherter, Minn. They probably saved my life. I lost S2 thru 5 and my tailbone. I am...
Hello, I was just diagnosed with sacral chordoma at the Mayo Clinic in Jacksonville. I am researching the best hospital to have my surgery. I would appreciate...
Hello: There are varied options these days as things seem to be changing with technology and the learning curve on Chordoma. Feel free to contact me off line...
... To Mark My doctors in Italy told me always need surgery for chordoma and after radiations, always, cause radiation in tumor alter the tumor and after the...
I was diagnosed with a Chordoma at T3 - T4 in April of this year. But first let me back up a bit. In Sept. of 2008 I was diagnosed with Non-Hodgkin's Large...
... so glad that the surgery went well and I go to Seattle for my doctor and my checkups. I was very impressed with the facility and the care I received. All...
