I'll be heading for the deep Canadian woods for a week or two starting this Saturday. A tiny cabin with waterfront, deer, trails and silence. No cable, no tv...
Removed the tumor from my sacrum and took out S2 and below. Saved S1 nerves and half of S2 nerves. Dr. Conrad, from Seattle Cancer Care Alliance, was very...
Chordoma Support Group Newsletter July 2009 Where are we?!? The Group has settled for the time being. I'm sorry it has taken so long. I wanted to find an...
Does anyone know what type of tumor designer, Tara Subkoff, has? It is reported she will have brain surgery in 2 months, that her tumor is benign, and that...
I was diagnosed with a Chordoma at T3 - T4 in April of this year. But first let me back up a bit. In Sept. of 2008 I was diagnosed with Non-Hodgkin's Large...
All the best to the people heading for the Chordoma Foundation conference in Bethesda, next weekend. It's a rare opportunity fot members of this group to meet...
My wife Amy, my mother Edwinna and I just wanted to relay that it was a privilege and honor to meet (in order) Dr. Simone Sommer, her son Josh Sommer, Dr....
i am seeing a neuro-enconoslogist at ucsf and have had my post-proton mri , my hormones they said are ok , i only taking vicodin for pain and no steriods or...
i had surgery at ucsf 2/08 and protin beam radaition in boston 6/08 i am having weight gain, massive headaches,and hormaol issues ....is anyone else?? any...
I just finished my 5 and last cyberknife. The remains of the clival tumor was only about 5 mm. so they feel that the success from treatment of previous...
It's been awhile since I've been on--life was good--now it's not! 5 years since 1st surgery(sinus)and 4 years since PTB. Tumor is starting to grow again--will...
I am writing on behalf of my friend who has a Chordoma he has underwent 3 debulking surgeries. The last surgery was pretty rough, he lost site in one way and...
Another group that I use, MeningiomaMommas, lost all their messages in a crash last night. [:((] [:((] [:((] [:((] Please, keep a copy of any particularly...
The Chordoma Foundation's Conference is coming up in a few weeks, in Washington DC. Although it is a separate group from ours, I am hoping to find someone...
My family is contemplating a move to West Virginia...more specifically Clarksburg! I was wondering if anyone lives there? Do you know of any medical facilities...
Everyone As you know, we have very few rules here, on the chordoma website. We do conform to the HON Code criteria although I have asked them to suspend our...
Second try - sorry. Something happened to the links in the last message. ... www.chordomasupport.org This is the new url of the Chordoma Support Group. It...
An anecdotal report on the use of chemotherapy by members of the Chordoma Support Group An online survey was prepared by a manager, in May 2009, to report on ...
Ann: thank you for this information and keeping us advised of the outcome. It is very helpful. Sharon/NYC **************An Excellent Credit Score is 750. See...
Just wanted one more chance to invite everyone who can, to attend the chordoma conference in Bethesda, Ma on June 26-28th of this year. It is being organized...
I have 35 responses - I would have liked to make it 40 but, oh well. Please consider completing the survey if you have ever discussed chemo with your doctor,...
Haven't had any more responses this week. Please complete the survey even if you haven't had chemo as the response numbers count when showing these things to...
Hi Everyone There are 99 members of this group now, with 140 messages on the board. I estimated that we had about 150 active members in the months before the...
Rodney I somehow missed your original post but I had CyberKnife treatment at Barrows in Phoenix a couple of years ago. I had 5 secessions and they last ...
I will be having 5 treatments of cyberknife starting next Thursday on the small bit of tumor that is left. Ihope to be able to return to work after my next...
We have 20 entries so far. Please complete the survey even if you have not had chemo. That will show what proportion of people have used chemo OR been offered...
