The bad penny reference is a good one...I'll have to tell dad...we have to keep our sense of humor, if nothing else! Thanks so much for all of your kind...
3346
Jennifer Leibowitz
jennifer_lei...
Mar 4, 2011 1:44 pm
I am so sorry to hear about your father. Stay strong because he needs someone he could lean on. ... From: Oregon Green Thumb <sa2m44@...> Subject: Re:...
3345
Leonor C. Pascual
nelliepascual45
Mar 4, 2011 7:44 am
... From: "boerema8113@..." <boerema8113@...> To: "Pascual, Leonor" <nelliepascual45@...> Sent: Thu, March 3, 2011 10:39:56 PM Subject:...
3344
desti625@...
ladonna.hoyt
Mar 4, 2011 4:38 am
Lisa, My heart goes out to both you and Martina, as you suffer disappointment at the failing health of your fathers. It is true though that the chordoma ...
3343
MPatt57@...
marypattison60
Mar 4, 2011 4:32 am
Hi Lisa Sorry to hear about your father. I am at a stage where the doctors are trying to get approval for the Gleevec. this thing is like a bad penny - just...
3342
MPatt57@...
marypattison60
Mar 4, 2011 4:29 am
Hi Melanie I can't tell from the message if it's the MRI that caused your panic attack but I wanted to pass on something I learned. I have always had a hard...
3341
Oregon Green Thumb
sa2m44
Mar 4, 2011 4:22 am
Lisa, I am very sorry to hear about father's recurrence. I hope that somehow there's a way they can still help him. All the best. Steve...
3340
Martina21@...
baurboys3
Mar 4, 2011 3:25 am
Oh Lisa, I feel for you. I've been a lurker in this group for a while now but they sure came to my rescue in 2007 when my dad went through some horrible...
3339
Nadine A.
naycordova
Mar 4, 2011 3:11 am
Lisa, I'm so sorry for you, your dad and your family. My thoughts and prayers are with you all. Just please don't give up hope. I've only been diagnosed 6...
3338
uswoods5
Mar 4, 2011 3:01 am
Lisa What a disappointment for your father and for you. I'm so sorry that things are so difficult for you both. Ann...
3337
Lisa Vanelli
lmvano
Mar 4, 2011 2:57 am
My dad just got some awful news today. Despite all of the treatment that he received since 2006, for his thoracic spinal chordoma, the damned thing is ...
3336
Oregon Green Thumb
sa2m44
Mar 4, 2011 12:30 am
Good for you! Best of luck and have a safe flight here. Steve...
3335
WH6QB - Bill
wmalvey
Mar 3, 2011 10:57 pm
... Cool. I'm 5.5 years out from surgery and 5 years from radiation (Cyber-Knife). Next MRI is in July.!!...
3334
shozgirl@...
shoozgirl
Mar 3, 2011 10:28 pm
very good news!! Thanks for letting us know! Sharon/NYC **~~**~~**~~**~~**~~**~~** Together We Will Cure Chordoma. Visit _www.Chordoma.org_...
3333
Melanie
mellimelwith...
Mar 3, 2011 10:24 pm
found out tuesday that my clivial chordoma has no regrowth !!!! almost 3 years since pb radiation.....love docs at ucsf , i been having MRI for 4 years now and...
3332
Anne Vigil
acvigil...
Mar 3, 2011 7:34 pm
Nikki, I am 5 months out from my surgery for sacral chordoma. I have been managed at Mass General in Boston and I loved all of my doctors and nurses. They...
3331
desti625@...
ladonna.hoyt
Mar 3, 2011 7:20 pm
Ann, I'd forgotten that you had that happen to you too. We're twins in that way, my first MRI in 1998 clearly showed my tumor, but it wasn't detected until a...
3330
Dr. Raphael A. Vigna
drralphvigna
Mar 3, 2011 4:54 pm
I also had a successful "resection" (sacral chordoma 10x13x9cms), good margins, etc., at Vancouver General Hospital, Vancouver Canada--Dr. Michael Boyd and ...
3329
shozgirl@...
shoozgirl
Mar 3, 2011 4:05 pm
Carol: that is great news. I think its wonderful that some countries have this arrangement. Good Luck in Boston and keep us posted. Its a great city and the...
3328
Austin Moore
amoore5535
Mar 3, 2011 2:46 pm
I had a sucessful "resection" , good margins, no recurrence, etc, at the Mayo Clinic-Dr. Frank Sim Austin ________________________________ From: ShaneK...
3327
uswoods5
Mar 3, 2011 11:34 am
Primary chordoma is slow. Mine showed up on an x-ray three years before diagnosis [no thanks to the idiot who decided my skull wasn't fractured but didn't...
3326
uswoods5
Mar 3, 2011 11:30 am
Great, it may have stopped snowing by then. Seriously, I had a good time in Boston, fitting in the proton beam in my spare time. Make sure you see some of the...
3325
Carol Coombs
carol.coombs
Mar 3, 2011 10:31 am
Yippee, Boston here I come. I have received a grant from the Australian government that will allow me to fly to Boston Mass General to have proton beam...
3324
nikki lee
steelers_girl3
Mar 2, 2011 9:55 pm
hi susan hes going on march 14th up to boston for his first consultation with the chordoma group. Everything is just so frustrating right now. my first...
3323
susan
sljones23
Mar 2, 2011 9:35 pm
Hi Nicole, I know what you are feeling and it is overwhelming. BUT, we both found this group, and we must have faith that there was a reason for us to be led...
3322
ShaneK
shaneknee
Mar 2, 2011 8:15 pm
Dear Nicole: I echo LaDonna's thoughts and will add my own. I politely hope you read through my list carefully. 1.) Your boyfriend and you will most likely get...
3320
desti625@...
ladonna.hoyt
Mar 2, 2011 7:11 pm
Hello Nicole, Sorry to hear about your boyfriend's tumor. The diagnosis is always so shocking, it takes a while for the news to sink in. You are doing the...
3319
steelers_girl3
Mar 2, 2011 5:45 pm
HI, I'm new to this. my boyfriend is 27 and recently got diagnosed with chordoma on the sacrum. he has had pain in his leg off and on since last august and...
3318
Melanie
mellimelwith...
Mar 1, 2011 12:27 pm
it took me serveral weeks to get everything too,,glad i could do something, there is a contact info on paperwork if there was any questions or concerns,i hope...
3317
uswoods5
Mar 1, 2011 12:03 pm
Here it is. You qualify if you have a diagnosis of chordoma, do not have anyone in the family who has had chordoma, and live in the USA or Canada. ...
