Does anyone know where you stay when you're in Boston for radiation? I'm just curious. We are trying to get everything together before we schedule surgery....
996
Amy Clem
amyclem...
Mar 1, 2010 11:18 pm
my sister had success with lyrica which is prescribed to fibromialgia patients. neurontin didn't work. lyrica is for nerve pain. She also used Fentanyl...
997
Amy Clem
amyclem...
Mar 1, 2010 11:27 pm
that was very nice patrick, from a caregiver....thank you. ________________________________ From: Oregon Green Thumb <sa2m44@...> To:...
998
crehanpatrick
crehanpatric...
Mar 1, 2010 11:40 pm
You are MORE than welcome. I have been caregiver to my parents, and guardian to my mentally disabled sister, all dead now, and my older sister has been...
999
Amy Clem
amyclem...
Mar 2, 2010 12:04 am
sharon I'd like to know what the drs say about your swallowing difficulty. My sister had the same problem and they told her it was after effects of the...
1000
Amy Clem
amyclem...
Mar 2, 2010 12:12 am
wonderful...thanks ann ________________________________ From: "Carter, Judith" <carterj@...> To: "Chordoma_Support_Group@..."...
1001
Tina Rosen
tinasfunstuff
Mar 2, 2010 12:13 am
The dept of radiation therapy will send a list of places to stay. I stayed at the Beacon House on Beacon Hill, which was an easy walk every day for treatment,...
1002
Amy Clem
amyclem...
Mar 2, 2010 12:25 am
where is your tumor? I would definately get 2nd 3rd etc...opinion. Surgery is the best option. Where do you live? ________________________________ From:...
1003
patrick crehan
crehanpatric...
Mar 2, 2010 12:42 am
I have a Clival Chordoma, on the clivus bone , above the brain stem, but, evidently, it was, or is, near the nerve that control the eyes. I have looked at an...
1004
shozgirl@...
shoozgirl
Mar 2, 2010 12:49 am
Did you mean this for me or the Sharon at other email below? I have some but she has more.....i just live w/it and am careful how I eat etc.. In a message...
1005
shozgirl@...
shoozgirl
Mar 2, 2010 12:50 am
I stayed at Longfellow Place which is rented apts with special MGH rate..but its expensive. Its one block away and has everything so it worked for us..I was...
1006
lmvano
Mar 2, 2010 12:51 am
I will keep all of them in my thoughts and prayers. Lisa...
1007
caddygirl57@...
reps1983
Mar 2, 2010 1:53 am
Thats very comforting. My husband and I are pretty unsure of what is ahead, but it makes me feel better knowing that there are places we can stay. I've been to...
1008
caddygirl57@...
reps1983
Mar 2, 2010 1:57 am
Expensive is what we are trying to get away from, but we will have to do whatever we have to do. I just hope that wherever we stay it will be comfortable...
1009
Tina Rosen
tinasfunstuff
Mar 2, 2010 2:08 am
Not knowing anything else about Preston's situation....he will be able to do whatever he wants to do when in Boston. So, you can take advantage of all it has...
1010
shozgirl@...
shoozgirl
Mar 2, 2010 2:13 am
MGH has a list of places w/discount and a shuttle bus...marriott..others...there are also discount coupons available for patients or FREE entry into many...
1011
shozgirl@...
shoozgirl
Mar 2, 2010 2:13 am
the marriot has units with small kitchens FYI.. In a message dated 3/1/2010 8:57:26 P.M. Eastern Standard Time, caddygirl57@... writes: Expensive is what...
1012
Tina Rosen
tinasfunstuff
Mar 2, 2010 2:17 am
There are prices that are comfy for everyone's budget, so you'll be able to pick and choose easily. If you like to contact me directly, please feel free to do...
1013
uswoods5
Mar 2, 2010 3:37 am
There's also Hope Lodge run by the Cancer Society with free self catering accomodation in Worcester, and a shuttle bus in to Boston. ...
1014
Molly Pedersen
mpederse7268
Mar 2, 2010 12:33 pm
There is a newer Hope Lodge facility in Boston proper. We stayed last summer for 7.5 weeks - it was lovely. Van ride to and from area hospitals is 15 minutes...
1015
Lisa Lee
livellee21
Mar 2, 2010 9:38 pm
Thanks Amy will keep that in mind because I'm on neurontin and they keep increasing the doses and it works for awhile then here comes the pain. I have been...
1016
desti625@...
ladonna.hoyt
Mar 2, 2010 10:24 pm
Lisa, I am also taking Neurontin, now up to 600 mg/day. For a while I didn't feel like it was helping. Then my doctor added Triliptal, also now up to 600 ...
1017
caddygirl57@...
reps1983
Mar 3, 2010 1:32 am
Thanks, I will keep that one in mind as well. ... From: uswoods5 <uswoods5@...> To: Chordoma_Support_Group@... Sent: Mon, Mar 1, 2010 10:37 pm ...
1018
Lisa Lee
livellee21
Mar 3, 2010 3:57 pm
So far LaDonna I'm up to 2700mg a day now & they wnt me to take an additional 600mg in am with the 900 so that is alot (I'm not doing it yet) but I feel like I...
1019
desti625@...
ladonna.hoyt
Mar 4, 2010 4:53 am
Wow, those are really high doses! I hope your doctors can find something that will work for you. I know it gets very frustrating when nothing is working on...
1020
mary bentley
mbbrvt
Mar 4, 2010 3:16 pm
HI Lisa, Â I have been on Lyrica and it is a wonderful drug. I started having nerve pain in my feet about 1 month after surgery. It was the most awful pain I...
1021
Lisa Lee
livellee21
Mar 4, 2010 3:30 pm
Thanks Mary will start looking into that one because it does seem the neurontin may not be for me. ... From: mary bentley <mbbrvt@...> Subject: Re:...
1022
desti625@...
ladonna.hoyt
Mar 4, 2010 7:07 pm
The Lyrica worked for me too. Very well. I took it for about 9 months. The only problem was that while taking it I gained about 30 pounds! Weight gain can...
1023
Melanie
mellimelwith...
Mar 4, 2010 7:25 pm
just saw dr at ucsf my growth hormone level was .2 (normal is 5.0) they are starting me on daily injections of growth hormones .anyone else doing it???...
1024
Ann Wood
uswoods5
Mar 4, 2010 7:29 pm
Mine's low too but we decided I wouldn't med for it. (Right now= 7 prescriptions and 3-4 otc's) A....
