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You have reached the Archives of the now closed Chordoma Support Group, an independent online community, active since 2001. This message board is closed to new postings, as of May 8th, 2013

There is a Chordoma Group on Facebook at https://www.facebook.com/groups/ChordomaSurvivorsPrivate/

If you are a newly diagnosed patient, be very sure that your surgeon has experience with chordoma. Ask if necessary. Chordoma surgery is usually followed up by radiation. Many people opt for proton beam radiation.

You can contact us at: chordomamanagers@gmail.com.

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